About Me
Everyone has their own story, and their own motivation behind why they do what they do. For me, that why was being diagnosed with epilepsy at 19 years old. On March 26, 2020, my life changed forever, and I have been on a mission ever since then to connect others who feel invisible.
Keep reading below to read my full story:
Life has a funny way of changing in an instant.
For me, that moment came on March 26, 2020. I was a 19-year-old college student, full of energy, ambition, and independence. My life was one of endless possibilities, and I never gave much thought to health complications, especially something as life-altering as epilepsy. But that morning, everything shifted.
It began like any other day, but by the time I regained consciousness, my world had flipped upside down. I found myself surrounded by paramedics, with my mom in tears and my younger brother standing nearby, his face filled with worry. I had blacked out and had my first seizure. It wasn’t just a one-time event. It was the start of a new, uncharted chapter of my life, one that would force me to face the unknown head-on. Suddenly, epilepsy was no longer a vague concept, it was my reality.
Living with epilepsy is a constant balancing act. Despite my best efforts, the unknown is always lurking. Over the next few years, I had what I called "slow moments"—brief, unsettling episodes where I felt disconnected from my body, like I was watching my life unfold from a distance. They only lasted for a few seconds, but they were enough to remind me that I was still living with an invisible illness that could strike at any moment.
Epilepsy has shaped me in ways I never imagined. It has forced me to confront the invisible battles many people face—battles that others may not see or understand. But it has also given me a deeper sense of purpose. I want to share my story not for sympathy, but to raise awareness. Epilepsy is an invisible illness, and its impact is often misunderstood. The stigma surrounding it needs to be broken. No one should feel ashamed to talk about their condition. No one should feel isolated or afraid to ask for help.
I’ve learned to embrace the unknown, not as a source of fear, but as an opportunity for growth. Each day I wake up without a seizure is a victory, and I hold onto that gratitude. I share my journey to remind others that they are not alone. I want to give hope to those who are struggling in silence, to let them know that there is strength in vulnerability and there is power in community.
In the face of the unknown, there is strength. And that strength comes from sharing our stories, supporting one another, and living with purpose. Let’s break the stigma together. Let’s create a world where invisible illnesses are met with compassion and understanding.
Together, we are stronger.